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Ethically Speaking

Coma Victim Hears All

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#1 of 122

     Posted 10/11/05 4:10 PM   
Jim Maki
 
From  Jim Maki  Posts 1  Last 5/25/06
To  All      [Msg # 344.1 ]    

An Italian coma victim who recently regained consciousness after two years in a nearly dead state, awoke saying he heard and understood everything happening around him during his long ordeal.  His coma was caused by a road accident in 2003. Doctors thought his condition was hopeless and that he would be dead in three to four months. 

Salvatore Crisafulli, a father of four, is describing his case as a "miracle" which proves that lost causes are anything but hopeless and his recovery appeared to strengthen the hand of Italians opposed to end-of-life solutions.

Even though the case is not medically comparable, his brother called Crisafulli "an Italian Terri Schiavo case" with reference to the brain-damaged Florida woman who died in March after her feeding tube was removed.  "The doctors said that I wasn't conscious, but I understood everything and I cried in desperation," Crisafulli was quoted as saying in Italian media on Wednesday.

Can or should we trust doctor evaluations of "hopeless" cases?  Does this make you rethink how long life-sustaining measures should be provided to patients who have been diagnosed as beyond hope of recovery?

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#2 of 122

     Posted 10/14/05 2:40 PM   
merzi
 
From  merzi  Posts 191  Last 5/1/08
To  Jim Maki      [Msg # 344.2 Message 344.2 replying to 344.1 344.1 ]    (Unread)
Hmmm.... well, someone with brain activity in a coma is one thing. Someone 'brain dead' - conscious or not - is another, IMO. And most important is knowing the ill person's wishes.

I can't imagine how terrifying it was to be trapped in a coma yet hear everything going on around you. Or maybe it wasn't even a real coma - whatever that is.

I strongly believe in the right to die. In my right to die, and the right of others to die, if they so choose. I'm not about to sit as judge and jury on someone whose ill family member doesn't have a Living Will and the judgment is left to the family member in charge. For myself, it's clearcut: No heroic measures and pull the plug.  And if the doctor goofed on the diagnosis, well, I won't be around to comment on it <g>.

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#3 of 122

     Posted 10/15/05 10:45 AM   
Robin Garr [sysop]
 
From  Robin Garr [sysop]  Posts 1331  Last 9/15/07
To  Jim Maki      [Msg # 344.3 Message 344.3 replying to 344.1 344.1 ]    (Unread)

Can or should we trust doctor evaluations of "hopeless" cases?  Does this make you rethink how long life-sustaining measures should be provided to patients who have been diagnosed as beyond hope of recovery?

I've been slow to respond to this question because I find this kind of issue much more difficult than almost any other.  I usually have a knee-jerk liberal's ability to render a snap judgement on most political and moral issues because I know I'm right. <g>

But on "life" issues, I think my Catholic upbringing interacts with my liberal tendencies and leaves my knee twitching aimlessly rather than jerking.

Specifically, my head says it's important to be "pro-choice" at both ends of life, leaving those horribly painful decisions about abortion and euthanasia safely in the hands of the individual most involved, or when necessary his or her family, and that there's no place for government or for rigid law in this deeply personal process.

But my heart says that life is precious and that killing is wrong. 

It's a dilemma, and not an easy one, but I ultimately come down on the side that it has to be an individual decision, unencumbered by law; and that if such a decision must be made at all, it should be made wisely and prudently and with good, objective advice.

I loved what Bill Clinton (and Hillary, too) said about abortion: It should be legal, available and rare. And I feel the same about euthanasia. Don't rule out the possibility of easing a loved one's journey to the other side when the end is near, pain is intractible, and there's no quality of life and no hope of restoring it. We do it for our pets (and that's a horribly painful and difficult decision, too). So we should be able to do it for our human loved ones.

But it would be horrible if we step onto a slippery slope that leads to euthanasia simply because grandpa is old and frail, or the new baby has Down Syndrome, or Johnny fell off a cliff and will have to be in a wheelchair now.

So, circling back to the original question, the family should seriously consider the doctor's advice. But the decision should be that of the individual and the family, not the doctor and certainly not the law.

No easy answers on this one.  I hope this makes some kind of sense.

 

 

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#4 of 122

     Posted 10/15/05 11:09 AM   
Jim Grey
 
From  Jim Grey  Posts 4973  Last Nov-21
To  Robin Garr [sysop]      [Msg # 344.4 Message 344.4 replying to 344.3 344.3 ]    

>>So, circling back to the original question, the family should seriously consider the doctor's advice. But the decision should be that of the individual and the family, not the doctor and certainly not the law.
No easy answers on this one. I hope this makes some kind of sense.<<

We agree that there are no easy answers on this one.

Having had to decide to witdraw life support from my own father I do have some experience in the dillema presented by facing the decision. 30 years after the experiene I became a family focal point for the end of life decision for my father's sister. She had 5 children and it was generally agreed that all should be in accord in making the final decision. 4 of the children turned to me to speak with the youngest of the children and gain her agreement.

Given those experiences and the Shiavo situation I expressed my own solution to both sons and my wife. I told them that it was not really about my wishes but rather about the healthy living individuals that would continue on for a time regardless.

My concerns in a personal end of life situation would not be for my personal physical or mental pain but about not being a burden on the family as it continues. One son is an atheist and the other is a devout believer. My wife is a religious woman. With that disparity there was sure to be conflict.

In my normal authoritarian manner I instructed that the final decision was more about the living than the dying. They all knew that I would pull the plug in an end of life situation but it was more important that there was complete consensus among the threee of them in what was to be done with me than any consideration of my state of pain or lack of awareness.

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#5 of 122

     Posted 10/15/05 1:23 PM   
Robin Garr [sysop]
 
From  Robin Garr [sysop]  Posts 1331  Last 9/15/07
To  Jim Grey      [Msg # 344.5 Message 344.5 replying to 344.4 344.4 ]    
 One son is an atheist and the other is a devout believer. My wife is a religious woman. With that disparity there was sure to be conflict.

In my normal authoritarian manner I instructed that the final decision was more about the living than the dying. They all knew that I would pull the plug in an end of life situation but it was more important that there was complete consensus among the threee of them in what was to be done with me than any consideration of my state of pain or lack of awareness.

Good points all, Jim.  Of course, when it comes down to it, the biggest issue in the Schiavo case was that the husband and the parents disagreed, and by all accounts came to despise each other; and amid really nasty charges in both directions, they were never going to agree.

If there's any lesson here, it's the one you make implicitly above: Have a firm, clear and unambiguous living will, and get legal advice about ensuring that the person you want to carry out your decisions holds an unchallengeable durable power of attorney if you're not competent.

Of course, a big part of the problem in cases like Schiavo's is that the debate falls into two categories that aren't entirely parallel.  On one side, there's the argument about who should make the decision and the individual issues in this particular case; on the other, there's the broader argument about "life" issues and whether euthanasia is permissible at all and under what circumstances.

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#6 of 122

     Posted 10/15/05 8:26 PM   
Jim Grey
 
From  Jim Grey  Posts 4973  Last Nov-21
To  Robin Garr [sysop]      [Msg # 344.6 Message 344.6 replying to 344.5 344.5 ]    

>>Of course, a big part of the problem in cases like Schiavo's is that the debate falls into two categories that aren't entirely parallel. On one side, there's the argument about who should make the decision and the individual issues in this particular case; on the other, there's the broader argument about "life" issues and whether euthanasia is permissible at all and under what circumstances.<<

I am not sure the human race fully understands "life issues" altogether. Given to us to decide we tend to go for what we *think* is the easy route. In my father's case 41 years ago I don't know today if I ha the plug pulled to make it easier for me or for him. In the Schiavo case the dissention did not make it easier for amyone. The final decision created greater enmity in the people involved and did not do any of them any good.

IMO we need to experience all sorts of difficulty to improve our ability to demonstrate and achieve an altruistic sense that supports the social species to which we belong. Downs Syndrome babies, deformed babies, wholly dependent elders and all the other situations we all seem to want to avoid.

My sister's death from cancer at the age of 20 over 40 years ago was not an easy death. It was one that taught how to persevere against difficult odds. I do not think I would have been the person I turned out to be absent that experience. Of course, some might opine that I might have turned out better.

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#7 of 122

     Posted 10/15/05 8:52 PM   
tulipdpink
 
From  tulipdpink  Posts 176  Last 10/4/08
To  Jim Maki      [Msg # 344.7 Message 344.7 replying to 344.1 344.1 ]    (Unread)

This man was clearly not in PVS...he was just in a coma....a coma means the brain is still INTACT...the brain is injured and the brain shuts down due to the injury but not dead or damaged beyond repair or recovery.  He cannot be compared to Terri Schiavo at all because Terri was PVS and this Italian man was NOT.  People seem to confuse and lump coma with PVS.  They are 2 very different thing.   Actually, a PVS patient APPEARS more alert than a comatose patient does, but PVS patient is beyond recovery because the brain is so heavily damaged and atrophied, and ther patients' movement are enabled by the brain stem, the only part of the brain that is still intact in most PVS patients.   Comatose patients have brains that are still functional, still intact, with some possible damages that can be rehabiliated.  

This man came out of his coma, able to speak, convey message, share his thoughts...that is a classic comatose patient, not PVS patient.   He can be comparable to TERRY WALLIS...an Oklahoma man who suddenly woke up after 19 years in coma and started talking a month later...however, his brain was so damaged his progress has been very slow and very limited, yet people compared him to Terri....NOT COMPARABLE.  Wallis was comatose, like this Italian man, and Terri was NOT comatose.

Cy
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#8 of 122

     Posted 10/15/05 8:55 PM   
tulipdpink
 
From  tulipdpink  Posts 176  Last 10/4/08
To  Robin Garr [sysop]      [Msg # 344.8 Message 344.8 replying to 344.3 344.3 ]    

I loved what Bill Clinton (and Hillary, too) said about abortion: It should be legal, available and rare. And I feel the same about euthanasia. Don't rule out the possibility of easing a loved one's journey to the other side when the end is near, pain is intractible, and there's no quality of life and no hope of restoring it. We do it for our pets (and that's a horribly painful and difficult decision, too). So we should be able to do it for our human loved ones.

I agree...I support the right to die, but like you said, the slope can be slippery if misused...and it IS a sticky issue nobody wants to deal with.

I hope this makes some kind of sense.

YOu do, to me.  I think you said it quite well.

Cy
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#9 of 122

     Posted 10/15/05 8:58 PM   
Robin Garr [sysop]
 
From  Robin Garr [sysop]  Posts 1331  Last 9/15/07
To  tulipdpink      [Msg # 344.9 Message 344.9 replying to 344.8 344.8 ]    

 I think you said it quite well.

Thanks, Cy.  I misquoted Billary, though, now that I look at it ... they said "safe, legal and rare" which puts it even better.

 

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#10 of 122

     Posted 10/16/05 1:33 AM   
Bev L [France]
 
From  Bev L [France]  Posts 611  Last Nov-20
To  Robin Garr [sysop]      [Msg # 344.10 Message 344.10 replying to 344.5 344.5 ]    
>>On one side, there's the argument about who should make the decision and the individual issues in this particular case; on the other, there's the broader argument about "life" issues and whether euthanasia is permissible at all and under what circumstances.

I think there's also another issue here, that often gets overlooked: the difference between euthanasia and the refusal/denial of treatment in situations that are terminal. The whole thing really is clouded by the observation that life, itself, is a terminal condition, but ultimately there is a huge difference between prolonging the life of a 20 year old and prolonging the life of a 90 year old, especially if the means of simply prolonging life is costly (in monetary or societal terms).
Cheers,
Bev
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#11 of 122

     Posted 10/16/05 7:21 AM   
bcdp683
 
From  bcdp683  Posts 1  Last 2/8/07
To  Jim Maki      [Msg # 344.11 Message 344.11 replying to 344.1 344.1 ]    (Unread)
I believe it's not our choice when we die, nor should we choose a time for anyone else to die. I believe Terry Shaivo's case was a type of murder, or at the very least negligence. Barbara in Florida
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#12 of 122

     Posted 10/16/05 8:41 AM   
Robin Garr [sysop]
 
From  Robin Garr [sysop]  Posts 1331  Last 9/15/07
To  Bev L [France]      [Msg # 344.12 Message 344.12 replying to 344.10 344.10 ]    

I think there's also another issue here, that often gets overlooked: the difference between euthanasia and the refusal/denial of treatment in situations that are terminal.

Good point, Bev, or - if I'm restating it accurately - there's a difference between allowing a terminal patient to die naturally and gently, and taking extraordinary, expensive and perhaps painful measures to keep a dying body alive a few hours, days, weeks or months longer than it would if nature were simply allowed to take its course.

Of course, this issue too was clouded in the Schiavo case by the question of the feeding tube, which despite its unpleasant sound is a simple and hardly intrusive way to provide nutriton.  Advocates for keeping her alive argued that removing the tube essentially caused her to die of hunger and thirst, which when you put it that way doesn't sound terribly humane. 

Looked at this way, it throws one issue into harsh light: If you've decided to let your loved one die, is it really better to let her gradually starve than to gently administer a planned overdose of sedative that puts her quietly and painlessly to sleep?

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#13 of 122

     Posted 10/16/05 8:47 AM   
Robin Garr [sysop]
 
From  Robin Garr [sysop]  Posts 1331  Last 9/15/07
To  bcdp683      [Msg # 344.13 Message 344.13 replying to 344.11 344.11 ]    (Unread)

I believe it's not our choice when we die, nor should we choose a time for anyone else to die. I believe Terry Shaivo's case was a type of murder, or at the very least negligence. Barbara in Florida

With respect, though, Barbara, that's not a "debate," it's a flat statement that "This is the way things ARE."  You certainly have a right to declare that Schiavo was "murdered," but most of us are here to look closely at issues and try to consider the moral and ethical implications with a somewhat more open mind. 

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#14 of 122

     Posted 10/16/05 8:56 AM   
demetriusdem
 
From  demetriusdem  Posts 1  Last 10/16/05
To  Jim Maki      [Msg # 344.14 Message 344.14 replying to 344.1 344.1 ]    (Unread)
WE SHOULD NOT LISTEN TO DOCTORS TO A POINT BECAUSE THEY ARE NOT OUR LORD AND SAVIOR ONLY HE KNOWS WHEN WE ARE BROUGHT HERE AND WHEN WE LEAVE HERE THERE JUST HERE TO DO THEIR JOBS FOR US BECAUSE WE DONT KNOW JUST LIKE THEY DONT.
GOD BLESS YOU AND KEEP PRAYING
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#15 of 122

     Posted 10/16/05 9:13 AM   
elmoreglin777
 
From  elmoreglin777  Posts 1  Last 10/16/05
To  tulipdpink      [Msg # 344.15 Message 344.15 replying to 344.8 344.8 ]    

 I help to take care of my mother who has had a stroke and is on a feeding tube. I've been paying close attention to this subject. When Mother Theresa visted the White House, she  appealed to Mr. Clinton to stand for the cause of the unborn. The audience stood to it's feet in applause, all except the Clinton's and the Gore's. After the event, the Presdient was asked about what Mother Theresea had said, to which he replied, "It's hard to argue about a life so well lived" Abortion is not RARE, it is an in most cases a quick remedy for a compromising situation.

It was Dr. Suess who said, " I person is a person not matter how small". We have lost repect for the unborn, and I believe  that the extreme violience in our society  is an out pouring of lack of repect in what Jesus called, " The least of these" at any stage in life.

God is the giver of life and He should be the taker as well. I do agree  with you that each  person should had it wriiten out legally about certain artifical means to sustain life after a long period of time and when to have it cut off, but only if there is no brain activity.  But in Terri's case the family was willing to care for her. If we must  ere, let us ere in the side of caution. I am sure that this man is glad that his family did not terminate his life.

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#16 of 122

     Posted 10/16/05 9:16 AM   
zedsethiopian
 
From  zedsethiopian  Posts 1  Last 10/16/05
To  Bev L [France]      [Msg # 344.16 Message 344.16 replying to 344.10 344.10 ]    

Doctors should remember two things. First they have sworn to save lives not terminate lives and secondly they should act humans not play God! In regards to the Italian coma, I have experienced in a car accident where I was knocked off but I could hear every crash and noise that was happening around me until my eyes opened up and I found that It was me who was in an accident. Killing in any manner is therefore wrong whether medically instituted judicially instituted or socially instigated.

Basliel Wolde Gabriel

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#17 of 122

     Posted 10/16/05 11:05 AM   
sigridpiroch
 
From  sigridpiroch  Posts 1  Last 10/16/05
To  Jim Maki      [Msg # 344.17 Message 344.17 replying to 344.1 344.1 ]    (Unread)
Life is always valuable. How are we, who know so little about the functioning of the brain, to decide who is viable and who is not? There is no specialist who can say for certain how any medical situation involving the brain and/or consciousness will, long-term, turn out. For every situtation that bears out what we expect, there are exceptions! I know, I'm married to an internist/cardiologist and we have watched "from the inside" for over 40 years. Our constitution guarantees the right "... to life, libery and the pursuit of happiness" for all. LIFE! TO ALL! What's so difficult about that?
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#18 of 122

     Posted 10/16/05 11:11 AM   
songofjoy42
 
From  songofjoy42  Posts 1  Last 10/16/05
To  Jim Maki      [Msg # 344.18 Message 344.18 replying to 344.1 344.1 ]    (Unread)
As long as there is life, the sick person needs to hear positive things--loving comments, uplifting words, music that one knows the sick person loves to hear (in my case, Christian music), prayers, songs, even the truth about what is going on with him/her. Negative words that serve no purpose should be spoken in another room.
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#19 of 122

     Posted 10/16/05 11:39 AM   
dave3048
 
From  dave3048  Posts 1  Last 8/25/07
To  Jim Maki      [Msg # 344.19 Message 344.19 replying to 344.1 344.1 ]    (Unread)
         Every man and woman lives and dies by the hand of GOD. The hand of man can never  prolong life ,but, the hand of man can  certainly quicken death.  Praise God the Father and the LORD JESUS CHRIST that this man's death was not quickened by the hand of man. 
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#20 of 122

     Posted 10/16/05 11:59 AM   
zcrewron
 
From  zcrewron  Posts 1  Last 10/16/05
To  Robin Garr [sysop]      [Msg # 344.20 Message 344.20 replying to 344.3 344.3 ]    
I'm a Catholic like you, and above all else I believe in life's challenges that God has given to us. I also believe that ultimately it is up to Him and not us to make these life decisions so how you can possibly consider justification in any form for abortion or euthanasia is beyond my understanding of a true Christian. As a devout Catholic, you certainly hear about the privilege of life from inception and to be able to say to God, "Well, yes God, I know this is what you wanted BUT...... they're poor, or it's inconvenient or whatever". Is that really having a belief in what you say you believe? It is not my opinion but my belief that we all need to start bringing God back into our lives not just with our lips but with our hearts, and it is my prayer for you and others like you who, for some reason, try to find some justification for abortion, gay marriages, euthanasia and all those things that our Bible clearly addresses if only folks would read it and pray about it. I am not judging you. I am praying for you to please get back what God has already clearly called you to do. It also sounds like you're big fans of Hillery and Bill Clinton, staunch Democrats. I'm not a Republican so don't think that's where I'm going. I do though have to vote for the platform that best supports my religious beliefs (obviously ones we share) and the Democratic platform clearly fights long and hard for the right to kill babiesand  the right for gay marriages (Leviticus Chapter 19 verse 22)clearly two areas your religion does not favor so again. Why would you tell God "but"..... I normally don't reply to things like this but who knows, maybe just maybe God wanted you to get this message as your food for thought for today. I truly did not want to write it but somehow felt led to do it anyway.So be it.
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Ethically Speaking

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